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Your doctor's intraocular pressure measurements are "very sketchy evidence"

Submitted by dave on Sun, 05/13/2012 - 11:54am

From "Review of Ophthalmology":

most human IOP measurements are “snapshot” measurements—a single reading taken periodically in a doctor’s office. Any conclusions about the nature and impact of fluctuation have therefore been largely based on very sketchy evidence.

That statement, from a 2011 article by the Senior Editor of  "Review of Ophthalmology," captures the motivation that lead to the creation of FitEyes six years ago and that has continued to motivate our engagement with high frequency home eye pressure monitoring (where we recommend multiple measurements per day).

The article can be found here: http://www.revophth.com/content/c/28662/

Glaucoma medication allergies, Serene Impulse and emotions

Submitted by dave on Sat, 05/21/2011 - 4:28pm

In a recent discussion on the FitEyes email discussion list we had an interesting exchange about allergies to the glaucoma eye drops. If you want to see how serious this can be, one picture is worth a lot of words:

glaucoma eye drop medication allergy

On Fri, May 20, 2011 at 7:39 PM, a FitEyes member wrote to the discussion list:

Glaucoma, elevated intraocular pressure, membrane permeability and emotions

Submitted by dave on Sat, 05/21/2011 - 4:07pm

For those of us with glaucoma or ocular hypertension, our goal is for the fluid in the eye (aqeous humor) to be able to flow freely out the two exit pathways from the eye. In this context, we had a recent discussion on the benefits of fish oil and DHA for glaucoma. In this discussion, someone raised this point:

Quote: "fish oil can improve membrane permeability"

That's a useful fact on its own. But that got me thinking about what I have learned from teaching and practicing Serene Impulse (and doing so as both a glaucoma patient and a personal self-tonometry researcher).

Fish oils (including DHA) may have a small effect on IOP -- but much less of an effect than other things I have identifed as a result of mixing self-tonometry and Serene Impulse -- and also as a result of interacting with other tonometer owners in the FitEyes community.

In pursuing knowledge that will help me manage glaucoma, I have a guiding principle: don't waste your time going after the small change. Go for the stuff with the big payoff. Mental and emotional tension, which always lead to tissue contraction, are a key area where we can find that big payoff. For some background, please see this link:

http://fiteyes.com/blog/dave/the-two-most-important-facts-you-should-know-about-glaucoma

And here's another related post by Bailey:

http://fiteyes.com/blog/bstruss/mental-emotional-and-lifestyle-factors-are-the-powerful-iop-influencers

And I will expand on all of this in the present article and tie it together into an (informal) theory of elevated intraocular pressure.

How to become a self tonometry participant?

Submitted by pflugrath on Thu, 05/19/2011 - 11:38am

If I can secure a prescription from my doctor I would like to join with other self-tonometry participants.

I think I understand the information that participants are responsible to gather and submit.

What are the steps I need to take to become involved?  Assuming I can get a prescription.

Thank you,

Judy

Filed Under (tags):

How to place glaucoma drops in your eyes

Submitted by Bailey on Sat, 05/14/2011 - 5:42am

Here is a video presentation by Doctor Ritch explaining how to properly place glaucoma drops into one's eyes. This is particularly helpful for patients with low vision. Also, the technique of punctal occlusion is addressed, and this helps to deliver the maximum amount of medication to the eyes while meanwhile reducing systemic absorption.

Who can we trust to provide good advice about natural glaucoma treatments?

Submitted by dave on Sat, 01/15/2011 - 2:08pm

The title of an article by Dr. Mercola caught my attention. He wrote an article on his website and entitled it, "Six Sure-Fire Tips to Prevent Glaucoma Naturally".

Let's examine Dr. Mercola's suggestions one by one and see if they are sound.

Some of my favorite articles on FitEyes.com

Submitted by dave on Tue, 12/07/2010 - 3:03pm

FitEyes favorite articlesI think the following list represents some of the most informative and useful articles on FitEyes.com. There are thousands of articles on FitEyes.com, so many good ones will not be on this list. But this list is a good place to start reading if you are new to FitEyes.com. If you are not new to our site, please make sure you have seen these articles.

Please feel welcome to add comments to this post to mention your own favorite articles on FitEyes.com.

Example Letter to Doctor Requesting a Prescription for A Tonometer for Home Monitoring

Submitted by dave on Sat, 11/20/2010 - 11:30am

This is an actual letter drafted by a FitEyes member for the purpose of obtaining a prescription for a tonometer she could use to monitor her eye pressure at home. She had previously not had success obtaining a prescription, but with this letter her doctor agreed! I asked her permission to share her letter. (I removed personal info before posting it.) Here it is.

Dear Doctor ______,

First set of results after some changes

Submitted by cormos on Sun, 10/17/2010 - 7:29am

After obtaining the Reichert 7CR and understand my eyes response to different situations, times of day and other stimuli, this first set of result is very encouraging for me after this small changes I have made.

Since I am the type of person using the left-brain, as is described in this post, as part of several tests performed simultaneously I eliminate caffeine from my diet in all its forms.

http://fiteyes.com/mistake-of-the-intellect

Recommended Doctors - Posting Rules

Submitted by dave on Sat, 08/28/2010 - 11:12am

In this forum you may post information about doctors you know to be supportive of home eye pressure monitoring. In my experience, most ophthalmologists and doctors of optometry will offer support to motivated patients who wish to monitor their eye pressure at home. However, some doctors are enthusiastic while others are reluctant. If your current doctor is reluctant to support your desire to do home monitoring, you can help educate your doctor.

Many FitEyes members have won over their doctors by simply discussing the topic with them. Sometimes it takes more than one discussion.

Mental, emotional and lifestyle factors are the powerful IOP influencers

Submitted by bstruss on Fri, 08/13/2010 - 10:15pm

I am learning so much more about these patterns and their effect on my IOP all the time. Recently, I had a major emotional crises with my family concerning a simple misunderstanding and lack of communication. Interestingly, my eye pressures did not rise in the first couple of days (though the stress was off the charts). However, after a couple of days, my eye pressures went crazy, and even with lumigan, I could hardly get them below 20s.

Why guess about your eye pressure when you can know?

Submitted by belann on Fri, 08/13/2010 - 3:05pm

I have had my tonometer for almost 6 months.  It has answered a multitude of questions about how my daily routine affects my health.  I didn't know, for example, that just taking a walk outside for a half hour or so would reduce my eye pressure, sometimes by as much as 50%.  I also didn't know that I wasn't one of the people whose pressures are higher at night--in fact my lowest pressures are at night.  (That was good news.  I was tired of sleeping with my head elevated).  

I have found no supplements that had any effect on lowering my IOP, but I have found that some supplements will raise my IOP quite significantly.  I know that out of control thoughts and periods of stress significantly raise my IOP in spite of the two drops I am using or any other healthy lifestyle choices I am making. 

Read more...

 

How to Buy a Tonometer and Join FitEyes.com

Submitted by dave on Fri, 05/07/2010 - 10:59pm

UPDATE: You have to purchase a tonometer directly through your doctor. As of mid-2011, tonometers are not aprpoved for home use in the USA yet. That is coming. However, you can still get a tonometer now. Doctors are allowed to prescribe medications and equipment for off-label use, so it is not a problem for your doctor that tonometers are not approved for home use. However, manufacturers and distributors of medical devices cannot recommend or sell a device for off-label use.

Filed Under (tags):

My experiences with self-tonometry

Submitted by Anonymous (not verified) on Tue, 05/04/2010 - 3:00pm

I have been part of FitEyes since 2006 and I bought my tonometer in late 2006. I've been using it almost every day since then. I am very calm about measuring my IOP perhaps 2 or 4 times a day (or sometimes not at all if away from home).

While away from home I use drops 'just in case'; at home I might go for several days with no drops while I monitor my IOP with my tonometer .

I love my new tonometer

Submitted by Maurice Dubois on Mon, 04/26/2010 - 11:38pm

First of all, from the bottom of my heart, I have to thank Dave for leading me to my purchase of my tonometer; what a fantastic instrument!

Several years ago, my ophthalmologist said that I probably had what is called "normal pressure" glaucoma; my pressure was usually 15-16 whenever he checked me, and the highest he ever recorded was 19 on my right eye. He told me to find a glaucoma specialist, so I did.

I went to the specialist for a couple of years, but several things discouraged me from continuing to see him. I found another ophthalmologist; she was somewhat younger and, I thought, perhaps less apt to be running a Speede Oil Change type of service, to see how many people she could get through her clinic in a day. She was a bit better at the latter, but she refused to give me a prescription for a tonometer. I left her and quickly acquired a tonometer prescription; and by the way, the requirement for a prescription for a non-contact tonometer is as silly as the need for me to have a real estate broker's license to sell real estate, or for a city to have building inspectors.

Are handheld or portable tonometers appropriate for home eye pressure monitoring?

Submitted by dave on Thu, 04/22/2010 - 12:29pm

In any tonometer (based on today's technology), you can have some, but not all of, the following:

  • ease of use
  • accuracy (reliability and validity of data)
  • low cost
  • portability

handheld portable tonometerPeople tend to give a priority to portability and low cost. New products aimed at this feature set have recently been announced. Does it make sense to utilize those devices for self-tonometry?

We have to agree that any trade off that doesn't include reliability and validity of IOP data invalidates the whole endeavor of self-tonometry. Not only is it meaningless to do it if the data is not of sufficient quality upon which to make important decisions, but it could actually be detrimental to do self-tonometry in that case.

With today's technologies, portability entails user-alignment (in the context of self-tonometry). Proper user-alignment to produce a valid measurement, by definition, depends upon user skill as well as various specific conditions of each measurement. User-alignment, regardless of the tonometer, is difficult! (User-alignment is defined as the operator of the tonometer having to align the tonometer with the eye manually. Alignment is a very precise process requiring a steady hand, good eyesight, training and practice.)

Therefore, the requirement of user-alignment conflicts with the requirement of reliability and validity of IOP data. We cannot guarantee reliability and validity of IOP data when variable user skills are required to produce that data.

If any decent ophthalmologist or scientist (or intelligent thinker) considers a set of IOP data, they must consider how the data was obtained. If patient skill played a critical role in producing that data, as it does when user-alignment is required, the clear thinking person will immediately discount that data. Therefore, the self-tonometrist's efforts may not produce much of value.

Complementary Therapy for the Treatment of Glaucoma by Robert Ritch

Submitted by rritch on Sat, 02/13/2010 - 11:02am

by Robert Ritch, MD

From the Departments of Ophthalmology, The New York Eye and Ear Infirmary, New York, NY, and The New York Medical College, Valhalla, NY

Supported in part by the Joseph and Marilyn Rosen Research Fund of the New York Glaucoma Research Institute

Corresponding author: Robert Ritch, MD, Glaucoma Associates of New York, The New York Eye and Ear Infirmary, 310 East 14th Street suite 304, New York, NY, 10003

Glaucoma is a progressive optic neuropathy characterized by a specific pattern of optic nerve head and visual field damage. Damage to the visual system in glaucoma is due to the death of the retinal ganglion cells, the axons of which comprise the optic nerve and carry the visual impulses from the eye to the brain. Glaucoma represents a final common pathway resulting from a number of different conditions that can affect the eye, many of which are associated with elevated intraocular pressure (IOP). It is important to realize that elevated IOP is not synonymous with glaucoma, but rather is the most important risk factor we know of for the development and/or progression of glaucomatous damage.

Leading Medical Specialists From Around the World Coalesce Around Self-Tonometry

Submitted by dave on Sun, 01/31/2010 - 11:43am

Leading Medical Specialists Support Self-Monitoring of Eye Pressure by Glaucoma Patients;

Self-tonometry has Potential to Transform Glaucoma Treatment, Says Co-Author of Recent Journal Article

self-tonometry eye pressure monitoringGrowing recognition among leading ophthalmologists and glaucoma specialists of an alternative option for measuring pressure in the eye may offer new hope for four million Americans – and millions more people worldwide – who risk permanent blindness, says a co-author of a recent article in the Survey of Ophthalmology.

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