You are here

Home » Community

Blogs

“Vote” Yes for FitEyes

Submitted by Vivian on Mon, 07/15/2013 - 9:29pm
If you are having trouble reading this email, click here to view it on the FitEyes website
From a recent posting to the FitEyes mail list:                         

I just want to say how grateful I am to have come upon this site. … the information you have amassed is amazing and has given me some hope in a bit of a scary time for me. The information … [posted]--in the form of research citings and personal experience is priceless.”

     ~ Lisa

 

How many of us have shared this wave of gratitude in finding FitEyes -- an oasis where we each discover the foundations of healthy vision? I join Lisa in sharing my own personal gratitude. Indeed through FitEyes, my cup runneth over. That's why I volunteer my time to FitEyes.

It was a stroke of good fortune that Dr. Ritch introduced me to David, the founder of FitEyes, and to self-tonometry. And what a treasure trove, I, and thousands of us, have in FitEyes. I have a sense of bonding and connection to thousands of people. My gratitude for the steps I have taken goes to David who founded FitEyes in 2006 to share his observations and bring light to all our journeys.

Each of your thoughtful postings, your personal observations and experiences, your questions, and the lively conversations they inspire, empower us with knowledge about glaucoma, its treatment, what’s new, and what’s next. FitEyes’ topics are diverse and far ranging. From medicine to meditation, from self-tonometry to surgery, from allopathic to alternative approaches. We can get the details or the daily digest.

FitEyes is unique. We are community of patients. FitEyes lets us share our concerns and helps us develop, and explore with others, treatment and lifestyle changes that help us manage our glaucoma.

Over the last year FitEyes has launched an entirely new website; we have published new articles, which one top glaucoma specialist described as "covering everything important about glaucoma"; we have moved our mail list (our technology that allows you to read this message) to a brand new server that is twice as powerful; we have personally helped many people start self-tonometry and we have improved our supporting technology for these tonometer owners. These recent improvements cost over $150,000 (in actual cash expenditures). Over the last couple years the volume of postings to our mail list has increased over 400%; in the last year the number of members on our mail list has increased 50%. This growth attests to the urgent and compelling need for FitEyes.

To date everything has been made possible through donations from just a few individuals and thousands of hours of volunteer efforts from David, Mark, Jerry, Jay and others. It’s a labor of love.  However, volunteer effors alone cannot keep FitEyes going. For example, sustaining and maintaining the technology infrastructure requires approximately $50,000 a year in real cash expenditures. Our full operating budget is substantially larger than this as we also pay staff members to provide support and assistance to you. (For example, even your requests for simple things such as assistance with passwords or changing email options are handled by a paid staff person and I know many of you would not be satisfied with anything less than the prompt and professional responses our staff is known for providing.)

We have dreams for enhancements to help FitEyes serve you even better. Unfortunately, those are not moving along as fast as they could if we had funding. In fact, I'm convinced that FitEyes could do things that no other organization in the world can do. We certainly have the expertise to do it and we have critical insights and experience that other similar organizations seem to be missing. FitEyes can accomplish things that will positively impact every glaucoma patient in the world, extending these benefits far beyond our members. But we cannot do any of that without your support.

FitEyes is solely user supported. We treasure our independence and our members’ freedom to express their opinions and to share personal experiences and do not want to be hampered by industry support. Now we have an urgent need to reach out to all of you to ensure the continuity of the FitEyes we count on, day after day and year after year. We truly need your financial contributions - to sustain and improve this vital resource.

Please help us so that we can continue to help you and thousands of others afflicted with glaucoma.

FitEyes’ survival depends on your generosity. Make a difference today! Stand up and be counted!

With gratitude and warm regards,

Vivian Ehrlich

Filed Under (tags):

Can Grounding Lower IOP?

Submitted by dave on Mon, 06/17/2013 - 1:49pm

Dr. Kondrot recently enticed FitEyes members with some interesting observations about what he called grounding and its effects on intraocular pressure. He also wrote about earthing and shared this video of his patient, Peter Abilogu, a professor of African Dance, performing in his office.

Scientist Discovers New Structure Inside The Eye

Submitted by FitEyesAdmin on Thu, 06/13/2013 - 12:35pm

By: Live Science Staff
Published: 06/12/2013 07:13 AM EDT on LiveScience

Scientists have discovered a previously unknown layer lurking in the human eye.

The newfound body part, dubbed Dua's layer, is a skinny but tough
structure measuring just 15 microns thick, where one micron is
one-millionth of a meter and more than 25,000 microns equal an inch. It
sits at the back of the cornea, the sensitive, transparent tissue at the
very front of the human eye that helps to focus incoming light, researchers say.

Tiny implant provides new surgical way to treat glaucoma

Submitted by Viktoryia on Wed, 06/12/2013 - 1:51pm

This is essentially an advertisement for a new surgical method, but it is also educational.

Patients can get the 1-millimeter implant at the same time they have cataract surgery.

MOORESTOWN, N.J. — Dr. Sander Cohen peered through a microscope as he managed the intricate dance between the instruments in his hands and the floor pedals he worked in his stocking feet.

Rescula Discussion

Submitted by dave on Mon, 06/03/2013 - 8:56am

A FitEyes member asked:   

I wonder if anyone of you has ever tried Rescula. This is a new product for glaucoma.

It’s actually old

The FDA approved Rescula in 2000 for the treatment of open-angle
glaucoma and ocular hypertension. The drug was taken off the market in
the United States in 2005 (apparently for commercial reasons). But the
commercialization rights were licensed in 2009 to Sucampo
Pharmaceutials, Inc. Sucampo then submitted a supplemental New Drug
Application to the FDA and relaunched the product.

Looking for an affordable NC tonometer in Italy or Europe

Submitted by glammer on Sat, 05/25/2013 - 11:00pm

Hi to all,

I'm an italian guy (33 year old) diagnosed with evolved pigmentary glaucoma in the right eye. I've already lost about my 34% of visual field there, and I'm scared as hell to become half blind in the future. I thnk that self tonometry is one of the very important things I can do to prevent that, to fight back, I mean. But here, seems impossible to find an affordable non-contact tonometer.

Doctors and Home IOP Monitoring

Submitted by terry on Wed, 05/22/2013 - 4:05pm

Who are the expert glaucoma MDs that are in full support of self monitoring?
Are there glaucoma research papers or clinical trials that support direct benefits of self tonometry?
Occasional IOP testing by MDs is not a highly profitable procedure, so why not transfer some of the data collection to the patient?

New Tonometer Owner

Submitted by dave on Mon, 05/20/2013 - 9:54pm

We received this comment from a FitEyes member:

I am now the proud owner of a Reichert 7CR. I'd like to participate in the Fiteyes research community and contribute my data. I've just emailed Terry to ask for software, but any pointers for how to collect and look at data would be much appreciated.
 
The picture I am getting of my pressures is remarkably at variance with what my various opthamologists have thought based on the occasional office visit.

Dorzolamide

Submitted by Billy508 on Fri, 05/03/2013 - 9:02am

I have been using Dorzolamide for the last year or so. Last week it started making my eyes to feel like I had something like dirt or hair in them. I have had to quit taking it and it is a month until I see the doctor. Comments?

Filed Under (tags):

Tonometers and Accuracy

Submitted by pinollxer on Sat, 03/16/2013 - 1:49pm

I have need of a home tonometer but am concerned about their accuracy at the higher pressures, i.e., in the 25 to 35 IOP range. I have noticed that most of the manufacturers’ data, when comparing to the GAT is in the normal range (16 to 21). This has little value to me since for the past 23 years my pressures have been in the mid to high twenties. I have had no vision loss and no indication of any change to the optic nerve.

Filed Under (tags):

Can eye overuse worsen glaucoma?

Submitted by Boho774 on Wed, 02/27/2013 - 4:39pm

I am 75 and have glaucoma but I can still read and drive (carefully). Is there such a thing as using the eyes too much? Like hours on the computer or hours reading. We know muscles can be overused why not optic nerves? I know it is good to take breaks but I suspect too much use can worsen glaucoma especially for seniors. Any advice or personal experience?

Filed Under (tags):

chocolate

Submitted by neesb on Sun, 12/02/2012 - 3:43pm

Hello everyone,

did people have some positive results on IOP by eating chocolate?

Short term, long term?

Eating chocolate makes me feel good, and I wonder if it influences the IOP. At least one time it did.

ecp laser

Submitted by lustrechild on Sat, 10/20/2012 - 8:53am

My glaucoma doctor wants to perform an ECP laser procedure at the same time she removes a cataract in my right eye which has had a trabectelectomy and a revision to patch and another revision to stop a leak.  Has anyone had this procedure and has it helped and what are risks?

Rainbow rings around lights, peripheral vision, macular are fine

Submitted by Liz pestaina on Fri, 09/28/2012 - 2:00pm

I don't want to start conventional treatment.I have cataracts and diabetes and allergies.operations are not on my calender.I am scared.I am in really good health strangely enough.I am gluten free,lactose and sulphite free eater and organics and have managed my diabetes with supplements. I am for the first time feeling not in control.Books have been 60% of my life,to me not seeing is death.My hospital appointment is for towards the end of this month when I will have a field test. I would like to see someone whose approach to health is not rigidly conventional.

Glaucoma drops side effects

Submitted by mazjan on Mon, 08/27/2012 - 9:03am

I have used Lumigan for three months now and it is still irritatating and the whites of my eyes are always red. I also have more glare as I feel the drops leave an oil coat on and it distorts my vision. Also, I can't sleep as well and therefore can't focus doing work. My eyelids feel heavy and tired and I seem to want to nap. I also started using combigan for two months now.

PS this is my first blog.

Pages

Subscribe to FitEyes.com RSS Feed Subscribe to RSS - blogs