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I don't think it's prudent to be telling each other we CAN restore lost vision

Submitted by lois_rochelle on Fri, 01/28/2011 - 4:06pm

I read a post here on FitEyes.com regarding trabeculotomy success or failure. I've NOT had a trabeculotomy.  About 6 months ago, one of my several doctors suggested that this operation might be in my future, and I did some reading.  There's an excellent book on glaucoma, What Your Doctor May Not Tell You About Glaucoma, by Gregory K. Harmon M.D. & Nancy Intrator, published in 2004, that has the following to say about trabeculotomy success rates (p. 180):

If the IOP readings are ever high it proves that they do go that high

Submitted by dave on Fri, 01/28/2011 - 1:57pm

From a reader:

The doctor looked at my self-tonometry eye pressure data I brought with me. But he did not give my data much credence. He said if the  intraocular pressure readings are ever high then that shows that they do go that high. He is quite intimidating.

The assumption by the doctor is that he must target his treatment at the maximum intraocular pressure peak no matter how short it lasted, or how infrequent it is or what caused the IOP to rise.

Ophthalmologists are not yet familiar with the concept of the ocular white coat syndrome (white coat ocular hypertension). Our self-tonometry data may show that our IOP is lower outside the doctor's office than inside the office. Many of us believe this is an important consideration and a few doctors are starting to pay close attention to this information.

But reading your doctor's intimidating response gave me an idea...

Conducting research on relaxation techniques to lower eye pressure

Submitted by Jerrold Ehrlich on Fri, 01/28/2011 - 1:35pm

I am an attorney and my spouse is a glaucoma patient. In the past I have volunteered some of my time to help FitEyes look into questions related to research projects and other activities related to the non-medical treatment of elevated 
intraocular pressure. I would like to share my feedback in two areas:

  • our outstanding questions
  • what we know so far.

Here are some of the outstanding questions that apply directly to the project presently under discussion, which is related to using a relaxation technique to lower intraocular pressure.

How do I spend my day off? On FitEyes, of course!

Submitted by dave on Mon, 01/24/2011 - 10:34pm

Sometimes I wonder where all my time goes. I know I volunteer a lot of time to FitEyes that is unrelated to working with my clients or doing other things I "have" to do. So I did a quick check of where my time went on my recent "day off." Here's what it looked like:

 

1 hour emails (mostly related to FitEyes)

1 hour discussing new FitEyes website work with a developer

3 hours researching backup and storage solutions for the FitEyes website (long overdue)

1 hour to get a replacement computer part

Tonometer in use!

Submitted by dave on Mon, 01/24/2011 - 10:07pm

I just received the email below. While I love these emails and each one makes me smile, this is a fairly typical response I see when someone receives their new Reichert tonometer. Keep in mind that the expectation from both of us is that we will have a telephone call when the person's new tonometer arrives and I will explain how to use it. The surprising result is that quite often I don't have to explain anything! That's how easy these Reichert tonometers are to use . This is true even for someone who is not good with technology.

Here's the email that just came today:

Filed Under (tags):

Has your glaucoma experience been like this? Does this sound familiar?

Submitted by skboren on Fri, 01/21/2011 - 8:15pm

Can those who have glaucoma tell me if my symptoms sound familiar? The opthamologist says my optic discs are enlarged, however, my IOP and corneal thickness are "normal". I am very afraid that no doctor is going to figure this out, and that I will go blind. I now must do my own detective work. I am 27 and am a mom of young children - I need my sight to take care of them. Here are my symptoms, which developed six months ago, and have persisted until the present time:

Air-puff vs Goldmann... again

Submitted by lzajdel2002 on Thu, 01/20/2011 - 6:54pm

I went right to our Walmart optical after having my IOP's read by my opthamoligist using a Goldman tonometer. The MD readings were 24 left and 23 right. Walmart used an air-puff and produced 28 left and 33 right. When I informed the Walmart optician of my experiment and the results, they remeasured the right, this time yielding 29. I know the relative accuracy and repeatibilty of these two instruments have been discussed before on this forum, but I feel these differences seem too large.

The real facts about low body temperature and glaucoma

Submitted by dave on Mon, 01/17/2011 - 5:22pm

The topic of low body temperature, immune system functioning and glaucoma has been of great interest to all of us recently. I would like to summarize what we know and present some feedback that comes to us directly from some of the most respected minds in ophthalmology: Robert Ritch, MD, Martin Wax, MD and Gülgün Tezel, MD. I want to thank each of these experts for taking the time to help clarify this topic for FitEyes's readers. In particular, I would like to thank Dr. Ritch for organizing all of this.

Deep Valleys vs IOP vs Glaucoma

Submitted by David3.14159 on Sun, 01/16/2011 - 7:32pm

My understanding is that persons with deep valleys (optic nerve entrances) have an edge when it comes to IOP vs Glaucoma. Is this true? Does anyone know. I have had deep valleys all my life, and my pressures have always been on the high side. Recent IOPs range from 20 - 25. My doctor does not think we should rely on my deep valleys, and so has had me on Travatan for several years. Deep valleys also seem to accentuate my depth perception. Any comments?

 

Dave

Filed Under (tags):

Calcium and Magnesium affects on IOP

Submitted by dsaito on Sun, 01/16/2011 - 2:09pm

I saw an interesting program on television where a woman giving birth went into a very serious seizure.  The doctors were scrambling to find magnesium to handle the seizure, but they were out!  They searched and searched and finally found some.  The magnesium was administered via IV.  Once the magnesium was administered the seizure stopped.  However, the patient become unresponsive and was unconcious.  They had found in their rush to find the magnesium, they had administered too much.   Luckily the lead doctor was studying recently for an exam, and knew the antidote to magnesium overdose is

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Who can we trust to provide good advice about natural glaucoma treatments?

Submitted by dave on Sat, 01/15/2011 - 2:08pm

The title of an article by Dr. Mercola caught my attention. He wrote an article on his website and entitled it, "Six Sure-Fire Tips to Prevent Glaucoma Naturally".

Let's examine Dr. Mercola's suggestions one by one and see if they are sound.

Please help with a comprehensive model of glaucoma

Submitted by Steve Richfield on Thu, 01/13/2011 - 2:13am

Hi all,

We seem to have enough information to form a rough draft of a comprehensive model of glaucoma. A model is subtly different than an explanation, in that an explanation must be based on something, e.g. direct observation, undeniable inference, lack of alteratives, etc., whereas as a model reads the same, except:

1.  Models are usually more detailed than explanations, because provability is no obstacle.

2.  Models choose "most likely" alternatives, and discard other viable possibilities.

A simple test of the autoimmune theory of glaucoma...

Submitted by Steve Richfield on Sun, 01/09/2011 - 9:18pm

EDITOR: please see this related article: The real facts about low body temperature and glaucoma

Hi all,

I came up with a simple question which you the reader of this posting can help answer, and which could just maybe lead to a rifle-shot cure for glaucoma without need to lower IOPs. Here's the story:

The Midpoint on the way to IOP Control

Submitted by Steve Richfield on Sun, 01/09/2011 - 11:56am

Nearly all health research efforts (and this forum is definitely a health research effort) have their midpoint marked when they can answer the simple question:

"Why is this problem really a good thing?!"

The answers to these questions usually come in the form of an understanding why we would already be dead if not for the "problem".

While I haven't read every single posting here, I have read many of them, and I see a possible midpoint emerging from them. I would enjoy seeing comments and observations that confirm/deny this picture. Consider...

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