Suspect exfoliation syndrome

I was recently informed that I was suspect for exfoliation syndrome.and was extremely disturbed by this news. The fact that this disease is often accompanied by systemic cerebral and cardiovascular disease with high morbidity and mortality resulted in a storm of anxiety regarding the potential future course of my life.  Although my IOP is within the normal range I do not know when and if this syndrome will progress as well as its speed of progression.

I would appreciate hearing from others with this syndrome.

Thanks.